Research Article

Assessment of Mental Health Literacy Among Home Caregivers of Persons Living with Mental Illness

Authors

  • Vivian Ukamaka Nwokedi Department of Clinical Pharmacy, Faculty of Pharmacy, University of Benin, Benin City, Nigeria https://orcid.org/0009-0008-0236-7101

    viviannwokedi250@gmail.com

  • Amber Otibhor Omoike Department of Pharmacy, Irrua Specialist Teaching Hospital (ISTH), Irrua, Edo State, Nigeria https://orcid.org/0009-0007-2094-864X
  • Negasi Tsegay Department of Epidemiology and Biostatistics, School of Public Health, Jackson State University, Jackson, Mississippi, USA
  • Emelda Amarachi Egwuatu Emergency Care, General Hospital Haql, Tabuk Region, Kingdom of Saudi Arabia
  • Wonderful Oluwatoyin Anosike Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, England https://orcid.org/0009-0008-8587-3156
  • Ibraheem Bolaji Abdulganeey School of Education, Harvard University, MA, USA
  • Ikuforiji David Ayobami Department of Accident and Emergency, State Hospital, Ijebu-Ode, Ogun State, Nigeria
  • Ndidiamaka Christiana Ani Mandel School of Applied Social Sciences, Case Western Reserve University, OH, USA

Abstract

Mental health has gained increasing global attention due to its growing prevalence and impact on individuals, families, and communities. Caregivers play a significant role in supporting individuals with mental illness, and their mental health literacy is crucial for providing effective care. However, caregivers’ mental health literacy has often been overlooked, and research has primarily focused on the general population or professionals. This study addresses this gap by assessing the mental health literacy among caregivers of patients living with mental illness. This study aimed to assess the mental health literacy among caregivers of patients living with mental illness, determine their perceptions about causes of mental illness, people living with mental illness, attitude towards people living with mental illness, and care and management of mental illness. A cross-sectional descriptive study was conducted among 356 caregivers of mentally ill patients attending a mental health clinic in Irrua Specialist Teaching Hospital, Edo State, Nigeria. A structured questionnaire was used to collect data, which was analyzed using descriptive statistics. The study found that while some caregivers held positive perceptions about mental illness, others exhibited stigmatizing views. Positively, a significant proportion of participants attributed mental illness to substance abuse (94.01%) and genetic inheritance (78.63%), and many believed that anyone can suffer from mental illness (88.89%) and that mentally ill persons can work (68.94%).  However, negative perceptions were also evident, with 14.53% of participants blaming people with mental illness for their condition, 37.03% believing they should not be allowed to make decisions, and 54.41% thinking they should be institutionalized. These findings highlight areas where mental health literacy among caregivers can be improved. The study reveals significant gaps in mental health literacy among caregivers of individuals with mental illness. While a large majority correctly identified causes such as substance abuse (94.01%), genetic inheritance (78.63%), and brain disease (88.89%), misconceptions persist, with 37.03% believing mentally ill individuals should not make decisions. A notable proportion also expressed reluctance toward social integration, with 31.05% viewing mentally ill persons as dangerous. These findings underscore the urgent need for tailored educational programs that enhance caregivers’ understanding and reduce stigma. An inclusive care model that supports both patients and caregivers can significantly improve care outcomes and foster better community engagement in mental health support.

Keywords:

Caregivers Home Caregivers Mental Health Mental Health Literacy Mental Illness Perceptions

Article information

Journal

Journal of Medical Science, Biology, and Chemistry

Volume (Issue)

2(2), (2025)

Pages

27-36

Published

12-07-2025

How to Cite

Nwokedi, V. U., Omoike, A. O., Tsegay, N., Egwuatu, E. A., Anosike, W. O., Abdulganeey, I. B., Ayobami, I. D., & Ani, N. C. (2025). Assessment of Mental Health Literacy Among Home Caregivers of Persons Living with Mental Illness. Journal of Medical Science, Biology, and Chemistry, 2(2), 27-36. https://doi.org/10.69739/jmsbc.v2i2.683

References

Alyafei, A., & Easton-Carr, R. (2024). The health belief model of behavior change. In StatPearls [Internet]. StatPearls Publishing. Available from https://www.ncbi.nlm.nih.gov/books/NBK606120

Andrade, C., Tavares, M., Soares, H., Coelho, F., & Tomás, C. (2022). Positive Mental Health and Mental Health Literacy of Informal Caregivers: A Scoping Review. International journal of environmental research and public health, 19(22), 15276. https://doi.org/10.3390/ijerph192215276

Ambikile, J. S., & Iseselo, M. K. (2023). Challenges to the provision of home care and support for people with severe mental illness: Experiences and perspectives of patients, caregivers, and healthcare providers in Dar es Salaam, Tanzania. PLOS global public health, 3(1), e0001518. https://doi.org/10.1371/journal.pgph.0001518

Bemme, D., & D’souza, N. (2012, July 23). Global mental health and its discontents. Somatosphere. https://somatosphere.com/2012/global-mental-health-and-its-discontents.html/

BinDhim, N. F., Althumiri, N. A., Ad-Dab’bagh, Y., Alqahtani, M. M. J., Alshayea, A. K., Al-Luhaidan, S. M., Al-Duraihem, R. A., & Alhabeeb, A. A. (2024). Exploring mental health literacy and its associated factors: A national cross-sectional study in Saudi Arabia, 2023. Risk Management and Healthcare Policy, 17, 355–363. https://doi.org/10.2147/RMHP.S442425

Carbonell, Á., Navarro-Pérez, J.-J., & Mestre, M.-V. (2020). Challenges and barriers in mental healthcare systems and their impact on the family: A systematic integrative review. Health & Social Care in the Community, 28(5), 1366–1379. https://doi.org/10.1111/hsc.12968

Chadda R. K. (2014). Caring for the family caregivers of persons with mental illness. Indian journal of psychiatry, 56(3), 221–227. https://doi.org/10.4103/0019-5545.140616

Cham, C. Q., Ibrahim, N., Siau, C. S., Kalaman, C. R., Ho, M. C., Yahya, A. N., Visvalingam, U., Roslan, S., Abd Rahman, F. N., & Lee, K. W. (2022). Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis. Healthcare, 10(12), 2423. https://doi.org/10.3390/healthcare10122423

Clement, S., Schauman, O., Graham, T., Maggioni, F., Evans-Lacko, S., Bezborodovs, N., Morgan, C., Rüsch, N., Brown, J. S., & Thornicroft, G. (2015). What is the impact of mental health-related stigma on help-seeking? A systematic review of quantitative and qualitative studies. Psychological medicine, 45(1), 11–27. https://doi.org/10.1017/S0033291714000129

Committee on Family Caregiving for Older Adults, Board on Health Care Services, Health and Medicine Division, National Academies of Sciences, Engineering, and Medicine, Schulz, R., & Eden, J. (Eds.). (2016). Families caring for an aging America (Ch. 3, Family caregiving roles and impacts). National Academies Press. https://www.ncbi.nlm.nih.gov/books/NBK396398

Corrigan, P. W., Druss, B. G., & Perlick, D. A. (2014). The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Psychological science in the public interest : a journal of the American Psychological Society, 15(2), 37–70. https://doi.org/10.1177/1529100614531398

Cruz, E., Paré, M. A., Stan, C., Voth, J., Ward, L., & Taboun, M. (2024). Caring for the caregiver: An exploration of the experiences of caregivers of adults with mental illness. SSM - Qualitative Research in Health, 5, 100406. https://doi.org/10.1016/j.ssmqr.2024.100406

da Silva, A. G., Baldaçara, L., Cavalcante, D. A., Fasanella, N. A., & Palha, A. P. (2020). The Impact of Mental Illness Stigma on Psychiatric Emergencies. Frontiers in psychiatry, 11, 573. https://doi.org/10.3389/fpsyt.2020.00573

Frauenholtz, S., Conrad-Hiebner, A., & Mendenhall, A. N. (2015). Children’s mental health providers’ perceptions of mental health literacy among parents and caregivers. Journal of Family Social Work, 18(1), 40–56. https://doi.org/10.1080/10522158.2014.974116

Furnham, A., & Swami, V. (2018). Mental health literacy: A review of what it is and why it matters. International Perspectives in Psychology: Research, Practice, Consultation, 7(4), 240–257. https://doi.org/10.1037/ipp0000094

Gallimore, J. B., Gonzalez Diaz, K., Gunasinghe, C., Thornicroft, G., Taylor Salisbury, T., & Gronholm, P. C. (2023). Impact of mental health stigma on help-seeking in the Caribbean: Systematic review. PloS one, 18(9), e0291307. https://doi.org/10.1371/journal.pone.0291307

Ganasen, K. A., Parker, S., Hugo, C. J., Stein, D. J., Emsley, R. A., & Seedat, S. (2008). Mental health literacy: focus on developing countries. African journal of psychiatry, 11(1), 23–28. https://doi.org/10.4314/ajpsy.v11i1.30251

Hurley, D., Swann, C., Allen, M. S., Ferguson, H. L., & Vella, S. A. (2020). A Systematic Review of Parent and Caregiver Mental Health Literacy. Community mental health journal, 56(1), 2–21. https://doi.org/10.1007/s10597-019-00454-0

Jorm A. F. (2012). Mental health literacy: empowering the community to take action for better mental health. The American psychologist, 67(3), 231–243. https://doi.org/10.1037/a0025957

Jorm, A. F. (2019). The concept of mental health literacy. In O. Okan, U. Bauer, D. Levin-Zamir, P. Pinheiro, & K. Sørensen (Eds.), International handbook of health literacy: Research, practice and policy across the life-span (pp. 53–66). Policy Press. https://doi.org/10.51952/9781447344520.ch004

Korhonen, J., Axelin, A., Stein, D. J., Seedat, S., Mwape, L., Jansen, R., Groen, G., Grobler, G., Jörns-Presentati, A., Katajisto, J., Lahti, M., & MEGA Consortium/Research Team (2022). Mental health literacy among primary healthcare workers in South Africa and Zambia. Brain and behavior, 12(12), e2807. https://doi.org/10.1002/brb3.2807

Kusaka, S., Foo, J. C., Yamaguchi, S., Yukawa, A., Arai, T., Sawamura, F., Togo, F., & Sasaki, T. (2024). A survey of mental health literacy in parents and guardians of teenagers. Frontiers in psychiatry, 15, 1295918. https://doi.org/10.3389/fpsyt.2024.1295918

Mideksa, G., Tesfaye, E., Yitayih, Y., Sime, Y., Aliye, K., & Gizaw, A. T. (2024). Mental health literacy and associated factors among traditional healers of Jimma town, southwest, Ethiopia 2020: A community-based, cross-sectional study. Frontiers in Psychiatry, 15, 1304454. https://doi.org/10.3389/fpsyt.2024.1304454

Monnapula-Mazabane, P., & Petersen, I. (2023). Mental health stigma experiences among caregivers and service users in South Africa: a qualitative investigation. Current psychology, 42(11), 9427–9439. https://doi.org/10.1007/s12144-021-02236-y

Morgado, T. M., Costa, T. O., de Araújo, O. L., & da Silva, R. G. (2022). Interventions for better mental health literacy. In C. V. de Almeida & S. Ramos (Eds.), Handbook of research on assertiveness, clarity, and positivity in health literacy (pp. 187–207). Medical Information Science Reference/IGI Global. https://doi.org/10.4018/978-1-7998-8824-6.ch011

Ndlovu, J. T., & Mokwena, K. E. (2023). Burden of Care of Family Caregivers for People Diagnosed with Serious Mental Disorders in a Rural Health District in Kwa-Zulu-Natal, South Africa. Healthcare, 11(19), 2686. https://doi.org/10.3390/healthcare11192686

Ocho, O. N., Moorley, C., Richardson Sheppard, C., Caesar-Greasley, L-A., & Hardy, S. (2022). Cultural influences on mental health provision in the Caribbean: How do contemporary perceptions and beliefs about persons with mental illness inform workforce transformation? Journal of Transcultural Nursing, 34(1), 14–23. https://doi.org/10.1177/10436596221121329

Ofovwe, C. E., & Osasona, S. O. (2022). Burden of caregiving among caregivers of patients with severe mental illnesses in Benin City, Nigeria. African health sciences, 22(2), 657–667. https://doi.org/10.4314/ahs.v22i2.75

Office of the Surgeon General (US), Center for Mental Health Services (US), & National Institute of Mental Health (US). (2001). Mental health: Culture, race, and ethnicity: A supplement to mental health: A report of the Surgeon General (Ch. 2, Culture counts: The influence of culture and society on mental health). Substance Abuse and Mental Health Services Administration. https://www.ncbi.nlm.nih.gov/books/NBK44249

Poreddi, V., BIrudu, R., Thimmaiah, R., & Math, S. B. (2015). Mental health literacy among caregivers of persons with mental illness: A descriptive survey. Journal of neurosciences in rural practice, 6(3), 355–360. https://doi.org/10.4103/0976-3147.154571

Reavley, N. J., & Jorm, A. F. (2012). Public recognition of mental disorders and beliefs about treatment: changes in Australia over 16 years. The British journal of psychiatry: the journal of mental science, 200(5), 419–425. https://doi.org/10.1192/bjp.bp.111.104208

Ren, Y., Wang, S., Fu, X., & Shi, X. (2025). A systematic review and meta-analysis of implicit stigma toward people with mental illness among different groups: Measurement, extent, and correlates. Psychology Research and Behavior Management, 18, 851–875. https://doi.org/10.2147/PRBM.S503942

Sadik, S., Bradley, M., Al-Hasoon, S., & Jenkins, R. (2010). Public perception of mental health in Iraq. International journal of mental health systems, 4, 26. https://doi.org/10.1186/1752-4458-4-26

Sakwape, K., Kovane, G. P., Chukwuere, P. C., et al. (2025). Exploring the needs of family caregivers of people living with mental illness: A qualitative study in Lobatse, Botswana. BMC Nursing, 24, 183. https://doi.org/10.1186/s12912-025-02813-7

Salari, R., & Filus, A. (2017). Using the Health Belief Model to Explain Mothers’ and Fathers’ Intention to Participate in Universal Parenting Programs. Prevention science: the official journal of the Society for Prevention Research, 18(1), 83–94. https://doi.org/10.1007/s11121-016-0696-6

Thornicroft, G., Mehta, N., Clement, S., Evans-Lacko, S., Doherty, M., Rose, D., Koschorke, M., Shidhaye, R., O’Reilly, C., & Henderson, C. (2016). Evidence for effective interventions to reduce mental-health-related stigma and discrimination. Lancet, 387(10023), 1123–1132. https://doi.org/10.1016/S0140-6736(15)00298-6

Timko, C., Lor, M. C., Rossi, F., Peake, A., & Cucciare, M. A. (2022). Caregivers of people with substance use or mental health disorders in the US. Substance abuse, 43(1), 1268–1276. https://doi.org/10.1080/08897077.2022.2074605

Whitley, R. (2015). Global Mental Health: concepts, conflicts and controversies. Epidemiology and psychiatric sciences, 24(4), 285–291. https://doi.org/10.1017/S2045796015000451

World Health Organization. (2022, June 17). Mental health: Strengthening our response. https://www.who.int/news-room/fact-sheets/detail/mental-health-strengthening-our-response

Zhou, Z., Wang, Y., Feng, P., Li, T., Tebes, J. K., Luan, R., & Yu, Y. (2021). Associations of Caregiving Knowledge and Skills With Caregiver Burden, Psychological Well-Being, and Coping Styles Among Primary Family Caregivers of People Living With Schizophrenia in China. Frontiers in psychiatry, 12, 631420. https://doi.org/10.3389/fpsyt.2021.631420

Yang, X., Hu, J., Zhang, B., Ding, H., Hu, D., & Li, H. (2024). The relationship between mental health literacy and professional psychological help-seeking behavior among Chinese college students: Mediating roles of perceived social support and psychological help-seeking stigma. Frontiers in Psychology, 15. https://doi.org/10.3389/fpsyg.2024.1356435

Yuan, Q., Picco, L., Chang, S., Abdin, E., Chua, B. Y., Ong, S., Yow, K. L., Chong, S. A., & Subramaniam, M. (2017). Attitudes to mental illness among mental health professionals in Singapore and comparisons with the general population. PloS one, 12(11), e0187593. https://doi.org/10.1371/journal.pone.0187593

Downloads

Views

77

Downloads

18